{"id":19,"date":"2014-06-23T19:44:04","date_gmt":"2014-06-23T19:44:04","guid":{"rendered":"http:\/\/parmzilla.com\/liver\/wp\/?page_id=19"},"modified":"2014-06-24T06:04:41","modified_gmt":"2014-06-24T06:04:41","slug":"my-mothers-story","status":"publish","type":"page","link":"https:\/\/parmzilla.com\/liver\/wp\/?page_id=19","title":{"rendered":"My Mother&#8217;s Story"},"content":{"rendered":"<p>My mother was diagnosed with Breast Cancer in November of 2010. \u00a0Luckily the cancer was detected early enough that her treatment and recover were relatively low-risk of recurrence.\u00a0 The surgeon performed a quick lumpectomy, which meant that she did not go through chemotherapy, but she did have to go through radiation treatment.\u00a0 This allowed my mother to continue working during treatment, which included taking a medication called Tamoxifen to prevent the Breast Cancer from coming back.<\/p>\n<p>Throughout her treatment for breast cancer, she started getting more and more lethargic, making it more and more difficult to stay get through her days at work.<\/p>\n<p>On a routine visit to her primary care physician, she mentioned that she bled a lot when she had a cut.\u00a0 That prompted the doctor to do some blood tests. \u00a0Shortly after the blood tests he forwarded her results to the oncologist to check to see if the Tamoxifen had been causing bleeding.\u00a0 The oncologist ordered more blood tests and an ultrasound.\u00a0 The ultrasound showed signs of Cirrhosis of the liver. \u00a0The oncologist also referred her to a Gastro Intestinal doctor.<\/p>\n<p>The GI doctor finally diagnosed my mother with <a title=\"Fatty Liver Disease\" href=\"http:\/\/en.wikipedia.org\/wiki\/Fatty_liver\" target=\"_blank\">Fatty Liver Disease<\/a>\u00a0then ordered a biopsy, which confirmed that she had Cirrhosis.\u00a0 Fatty Liver Disease seemed like an unusual diagnosis, because my mother almost NEVER drank alcohol.\u00a0 More specifically she was diagnosed with <a title=\"NASH\" href=\"http:\/\/www.webmd.com\/digestive-disorders\/tc\/nonalcoholic-steatohepatitis-nash-overview\" target=\"_blank\">Nonalcoholic Steatohepatitis (NASH)<\/a>\u00a0and <a title=\"Cirrhosis\" href=\"http:\/\/www.mayoclinic.org\/diseases-conditions\/cirrhosis\/basics\/definition\/con-20031617\" target=\"_blank\">Cirrhosis<\/a>\u00a0of the Liver. \u00a0Basically, the worst possible combination on the spectrum of <a title=\"NAFLD\" href=\"http:\/\/patients.gi.org\/topics\/fatty-liver-disease-nafld\/\" target=\"_blank\">Nonalchoholic Fatty Liver Disease (NAFLD)<\/a><\/p>\n<figure id=\"attachment_20\" aria-describedby=\"caption-attachment-20\" style=\"width: 300px\" class=\"wp-caption alignnone\"><a href=\"http:\/\/parmzilla.com\/liver\/wp\/wp-content\/uploads\/2014\/06\/NAFLD.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-20\" src=\"http:\/\/parmzilla.com\/liver\/wp\/wp-content\/uploads\/2014\/06\/NAFLD-300x199.jpg\" alt=\"Stages of NAFLD\" width=\"300\" height=\"199\" srcset=\"https:\/\/parmzilla.com\/liver\/wp\/wp-content\/uploads\/2014\/06\/NAFLD-300x199.jpg 300w, https:\/\/parmzilla.com\/liver\/wp\/wp-content\/uploads\/2014\/06\/NAFLD.jpg 520w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/a><figcaption id=\"caption-attachment-20\" class=\"wp-caption-text\">Stages of NAFLD<\/figcaption><\/figure>\n<p><strong>So where did her NAFLD come from?<\/strong><\/p>\n<p>We don\u2019t know.\u00a0 It could have been from <a href=\"http:\/\/www.ncbi.nlm.nih.gov\/pubmed\/20041406\" target=\"_blank\">obesity<\/a>, a lifetime of eating processed foods with <a href=\"http:\/\/www.ncbi.nlm.nih.gov\/pmc\/articles\/PMC2886383\/\" target=\"_blank\">high fructose corn syrup<\/a>,\u00a0even\u00a0from <a href=\"http:\/\/livertox.nlm.nih.gov\/Tamoxifen.htm\" target=\"_blank\">the drug that was designed to save her from breast cancer<\/a>.\u00a0 It could also be <a href=\"http:\/\/www.ncbi.nlm.nih.gov\/pubmed\/23213074\" target=\"_blank\">genetic<\/a>\u2026 but we will get to this later.\u00a0 All we know is that her state of well being had been severely compromised.\u00a0 She decided to retire from work, because she could not handle the general lethargy from both recovering from Breast Cancer, and now dealing with a debilitating liver disease.<\/p>\n<p>Unfortunately, her retirement ended up fraught with further health issues.\u00a0 I have watched as my own mother\u2019s health has eroded extremely quickly in what should have been a nice relaxing outro from the working world.\u00a0 She ended up on the first name basis with most of the ER staff at the local hospital having to visit the ER nearly 5 times in less than a year.<\/p>\n<p>In April 2013, my parents took a trip to Florida to visit relatives and relax a bit.\u00a0 Unfortunately, the trip was less relaxing and much more scary, when my mother disappeared in the lobby of the hotel, only to be found 30 minutes later in the gift shop incoherent, shakey, and disoriented.\u00a0 My father immediately drove her to the Emergency room where the staff initially diagnosed her with a <a href=\"http:\/\/www.stroke.org\/site\/PageServer?pagename=tia\" target=\"_blank\">TIA stroke<\/a>.\u00a0 After spending the next 3 days in a hospital bed in Florida, the doctors finally attributed the TIA-like symptoms to <a href=\"http:\/\/pubs.niaaa.nih.gov\/publications\/arh27-2\/143-145.htm\" target=\"_blank\">extremely high levels of ammonia in her blood, which were likely caused by her malfunctioning liver<\/a>.<\/p>\n<p>In June 2013 my mother spent an entire night awake, <a href=\"http:\/\/www.nlm.nih.gov\/medlineplus\/ency\/article\/000255.htm\" target=\"_blank\">vomiting blood, once again caused primarily by her malfunctioning liver<\/a>.\u00a0 In one procedure called <a href=\"http:\/\/www.webmd.com\/brain\/paracentesis-17042\" target=\"_blank\">Paracentesis<\/a>\u00a0the GI doctor removed 7.25 Liters (16.5 LBS) of liquid from her abdomen.\u00a0 This is extremely dangerous, as it dropped her blood pressure to an extremely low level, which could have caused her heart to stop completely.<\/p>\n<p>In August 2013 my mother started feeling discomfort from the scarring from her initial breast surgery and requested that the surgeon go in again to remove the scar tissue.\u00a0 After the scar tissue had been removed my mother had a hard time healing the new wound. \u00a0This inability to heal wounds is one of the many side effects of a severely diseased liver.\u00a0 It took 6 months to fully heal a wound about the size of a quarter, about an inch deep.<\/p>\n<p>My Mother should be enjoying her retirement, instead she has been resigned to sleeping nearly 12-16 hours a day, unable to stay awake long enough to enjoy a full day-trip.\u00a0 I have watched her go from being a vibrant, happy mother, to a frail, shell of her former self.\u00a0\u00a0 On advice from others, my mother sought a second opinion on her Liver diagnosis, and paid out-of-pocket to visit UCSF\u2019s Hepatology Department for an evaluation.<\/p>\n<p>Her liver was unhealthy enough that we know she needed a new liver, but the process of getting a replacement does not happen over night.\u00a0 But here is where the story takes another tragic turn.\u00a0 In order to be listed to receive a transplant, you are required to be 5 years cancer free.\u00a0 I understand the reason behind that rule: if you have any remaining cancer, then you will most likely die from the cancer before dying before dying from a diseased organ, and receiving a donated organ could cause the cancer to spread to the new organ.<\/p>\n<p>October 30<sup>th<\/sup>, 2013, I had one of the first opportunities to visit my mother\u2019s Hepatologist at UCSF, who brought up the possibility of a <a href=\"http:\/\/www.ucsfhealth.org\/clinics\/liver_transplant\/\" target=\"_blank\">Live Donor Transplant<\/a>.\u00a0 She also mentioned that UCSF had recently relaxed their policy regarding certain types of breast cancer, which my mother qualified.\u00a0 My mother passed along her breast cancer biopsy results.\u00a0 After discussion with the head of the transplant unit, it was determined that the chance of the breast cancer coming back was small enough to qualify my mother on the transplant list.<\/p>\n<p>After undergoing a few more rounds of tests with her healthcare provider, my mother was finally deemed eligible for a liver transplant.\u00a0\u00a0 After nearly 3 years of suffering, my mother was finally listed on the Northern\u00a0California\u00a0<a href=\"http:\/\/www.webmd.com\/digestive-disorders\/digestive-diseases-liver-transplantation?page=2\" target=\"_blank\">deceased liver donor transplant list<\/a>.<\/p>\n<p>So here&#8217;s my chance to give my mother what she gave to me; <a title=\"The Living Donor Experience\" href=\"http:\/\/parmzilla.com\/liver\/wp\/?page_id=27\">The gift of Life<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>My mother was diagnosed with Breast Cancer in November of 2010. \u00a0Luckily the cancer was detected early enough that her treatment and recover were relatively low-risk of recurrence.\u00a0 The surgeon performed a quick lumpectomy, which meant that she did not go through chemotherapy, but she did have to go through radiation treatment.\u00a0 This allowed my &hellip; <a href=\"https:\/\/parmzilla.com\/liver\/wp\/?page_id=19\" class=\"more-link\">Continue reading <span class=\"screen-reader-text\">My Mother&#8217;s Story<\/span> <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":1,"comment_status":"open","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-19","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/parmzilla.com\/liver\/wp\/index.php?rest_route=\/wp\/v2\/pages\/19","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/parmzilla.com\/liver\/wp\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/parmzilla.com\/liver\/wp\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/parmzilla.com\/liver\/wp\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/parmzilla.com\/liver\/wp\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=19"}],"version-history":[{"count":3,"href":"https:\/\/parmzilla.com\/liver\/wp\/index.php?rest_route=\/wp\/v2\/pages\/19\/revisions"}],"predecessor-version":[{"id":32,"href":"https:\/\/parmzilla.com\/liver\/wp\/index.php?rest_route=\/wp\/v2\/pages\/19\/revisions\/32"}],"wp:attachment":[{"href":"https:\/\/parmzilla.com\/liver\/wp\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=19"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}